The first parent and patient organization within Germany for disorders that are affecting the neurotransmitter metabolism was founded recently within the framework of the DIG PKU. The group aims to improve the situation of families affected by these rare diseases and to bring them together for an exchange of their experiences. The group can be found on this web site:

https://www.dig-pku.de/wcf/index.php?neurotransmitterstoerungen-nts/