WE NEED YOUR HELP! PATIENT REPORTED OUTCOME MEASURES (PROMS)
FOR NEUROTRANSMITTER RELATED DISORDERS
QUESTIONNAIRE!

The patient organization Hrabrisa (Home – Hrabriša) has developed a questionnaire in collaboration with iNTD to collect patient-reported outcomes (PROMs) (https://www.proms-ntd.org/).

We want to understand better the experience of patients, families, and caregivers face with neurotransmitter-related disorders. Through this questionnaire, you will be able to directly inform clinicians and researchers how well symptoms are managed and any symptoms/ problems you feel that are not addressed. Your input will help shape and impact research directions in the field to improve care and treatment for all affected individuals.

The questionnaire is available in versions for patients and caregivers, as well as in multiple languages (English, Chinese, German, Greek, Spanish, French, Italian, Serbian, and Turkish).